The backbone of funding, research, and clinical trial recruitment of rare diseases globally
Innovating Biomedical Solutions for a Healthier Future
Rare Disease Clinical Trials
A $1B+ Patient Recruitment Market
1 in 10 Americans
have a rare disease - and nearly
half of these patients are children.
(NIH, 2025)
Who We Are
David
Oleksy
Harvard University
Biology
Suchi
Patel
University of Pennsylvania
Biochemistry, Finance
Alvin
Wang
University of California, SD
Bioengineering
Our Presentation as Finalists at the 2025 Harvard Rare Disease Hackathon
Rare Disease Clinical Trials
Our Target Customers
Biotech & Pharmaceutical Companies
Key Need: Accelerate enrollment timelines, reduce trial failure due to poor accrual, improve ROI on R&D investments.
Contract Research Organizations (CROs)
Key Need: Streamline recruitment processes for their sponsor clients, differentiate themselves in the market by offering niche/rare disease solutions.
Academic Medical Centers & Research Institutions
Key Need: Tools and networks to access relevant patient populations beyond their local catchment area.
Patient Advocacy Groups & Global Foundations
A trusted platform that makes clinical trial options more accessible to their communities.
Rare Disease Clinical Trial Recruitment & Funding Bottlenecks
Nearly 80% of trials fail to meet enrollment targets on schedule causing financial and development hurdles.
Travel to specialized sites can be an “insurmountable barrier” for those with severe conditions.
RECRUITMENT HURDLES
Manual prescreening can take nearly 86 minutes per patient, as staff sift through medical records.
PROTOCOL &
DOCUMENTATION DELAYS
Retaining patients is equally challenging as
the average dropout rate across trials is about 30%.
PATIENT ENGAGEMENT
Clinical Trials on Rare Diseases Worldwide
